- DE
- CN
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- EU
- Thematic: No
- DE
- CN
- SG
- SE
- EU
- Thematic: No
- Data Repository Germany Compatibility:Not yet registeredPartners:IMI Translational Medicine, Biomedical Science, MedicineIMI
re3data: r3d100013816
MDM-Portal (Medical Data-Models) is a meta-data registry for creating, analysing, sharing and reusing medical forms, developed by the Institute of Medical Informatics, Heidelberg University Hospital in Germany. see also https://doi.org/10.1055/s-0044-1786839 Electronic forms for documentation of patient data are an integral part within the workflow of physicians. A huge amount of data is collected either through routine documentation forms (EHRs) for electronic health records or as case report forms (CRFs) for clinical trials. This raises major scientific challenges for health care, since different health information systems are not necessarily compatible with each other and thus information exchange of structured data is hampered. Software vendors provide a variety of individual documentation forms according to their standard contracts, which function as isolated applications. Furthermore, free availability of those forms is rarely the case. Currently less than 5 % of medical forms are freely accessible. Based on this lack of transparency harmonization of data models in health care is extremely cumbersome, thus work and know-how of completed clinical trials and routine documentation in hospitals are hard to be re-used. The MDM-Portal serves as an infrastructure for academic (non-commercial) medical research to contribute a solution to this problem. It already contains more than 25,000 system-independent forms (CDISC ODM Format, www.cdisc.org, Operational Data Model) with more than 600,000 data-elements. This enables researchers to view, discuss, download and export forms in most common technical formats such as PDF, CSV, Excel, SQL, SPSS, R, etc. A growing user community will lead to a growing database of medical forms. In this matter, we would like to encourage all medical researchers to register and add forms and discuss existing forms.
All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=10.25504/fairsharing.wnk2eq&type=result"></script>'); --> </script>
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For further information contact us at helpdesk@openaire.eu - Institutional Repository Germany Compatibility:Not yet registeredPartners:TH Koln Technology Arts SciencesTH Koln Technology Arts SciencesAll Research products
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For further information contact us at helpdesk@openaire.eu - Data Repository Germany Compatibility:Not yet registeredPartners:Umweltbundesamt - Federal Environment Agency of Germany Environmental Science, Toxicology, environmental contaminantUmweltbundesamt - Federal Environment Agency of Germany
The ETOX database allows access to effects information from aquatic and terrestrial ecotoxicology. Furthermore, ETOX contains information on various national and international environmental quality guidelines, targets, standards, criteria, and limit values. In focus are substances which are relevant for assessment of surface water pollution to trigger the development of environmental quality standards according to Water Framework Directive 60/2000/EC.
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For further information contact us at helpdesk@openaire.eu - Institutional Repository Germany Compatibility:Not yet registeredPartners:Max Planck Institute for the Science of Human HistoryMax Planck Institute for the Science of Human HistoryAll Research products
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For further information contact us at helpdesk@openaire.eu - Data Repository Germany, Denmark Compatibility:collected from a compatible aggregatorPartners:Staatliche Naturwissenschaftliche Sammlungen Bayerns, Information Technology Center, SNSB, GBIF Natural Sciences, Geosciences (including Geography), Life SciencesStaatliche Naturwissenschaftliche Sammlungen Bayerns, Information Technology Center,SNSB,GBIFAll Research products
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For further information contact us at helpdesk@openaire.eu - Institutional Repository China (People's Republic of) Compatibility:Not yet registeredPartners:KMS Of Academy of mathematics and systems sciences, CASKMS Of Academy of mathematics and systems sciences, CASAll Research products
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For further information contact us at helpdesk@openaire.eu - Data Repository Germany Compatibility:Not yet registeredPartners:Münchener DigitalisierungsZentrum, Digitale Bibliothek, Leibniz Supercomputing Centre of the Bavarian Academy of Sciences and Humanities, Germany, BSB Humanities and Social Sciences, Engineering SciencesMünchener DigitalisierungsZentrum, Digitale Bibliothek,Leibniz Supercomputing Centre of the Bavarian Academy of Sciences and Humanities, Germany,BSB
re3data: r3d100010148
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For further information contact us at helpdesk@openaire.eu - Data Repository Canada, Germany Compatibility:Not yet registeredPartners:MNI, FZJ Life Sciences, Neurosciences, MedicineMNI,FZJ
re3data: r3d100013950
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For further information contact us at helpdesk@openaire.eu - Institutional Repository Germany Compatibility:OpenAIRE 3.0 (OA, funding)Partners:Scientific Information Service for Mobility and Transport Research (FID move)Scientific Information Service for Mobility and Transport Research (FID move)OAI-PMH URL: http://publish.fid-move.de/oai/
The repository is used for the publication, the proof and the long-term archiving of electronic documents. The interface is available in German and English.
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For further information contact us at helpdesk@openaire.eu - Data Repository European Union Compatibility:OpenAIRE Data (funded, referenced datasets)Partners:CESSDA Consortium, CESSDA Team Social Sciences, Empirical Social Research, Social and Behavioural SciencesCESSDA Consortium,CESSDA Team
re3data: r3d100010202
OAI-PMH URL: https://datacatalogue.cessda.eu/oai-pmh/v0/oaiThe CESSDA Data Catalogue contains the metadata of all data in the holdings of CESSDA service providers. It is a one-stop-shop for search and discovery, enabling effective access to European research data for researchers. Details of over 40, 000 data collections are listed. These are harvested from fifteen different CESSDA Service Providers.
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- Data Repository Germany Compatibility:Not yet registeredPartners:IMI Translational Medicine, Biomedical Science, MedicineIMI
re3data: r3d100013816
MDM-Portal (Medical Data-Models) is a meta-data registry for creating, analysing, sharing and reusing medical forms, developed by the Institute of Medical Informatics, Heidelberg University Hospital in Germany. see also https://doi.org/10.1055/s-0044-1786839 Electronic forms for documentation of patient data are an integral part within the workflow of physicians. A huge amount of data is collected either through routine documentation forms (EHRs) for electronic health records or as case report forms (CRFs) for clinical trials. This raises major scientific challenges for health care, since different health information systems are not necessarily compatible with each other and thus information exchange of structured data is hampered. Software vendors provide a variety of individual documentation forms according to their standard contracts, which function as isolated applications. Furthermore, free availability of those forms is rarely the case. Currently less than 5 % of medical forms are freely accessible. Based on this lack of transparency harmonization of data models in health care is extremely cumbersome, thus work and know-how of completed clinical trials and routine documentation in hospitals are hard to be re-used. The MDM-Portal serves as an infrastructure for academic (non-commercial) medical research to contribute a solution to this problem. It already contains more than 25,000 system-independent forms (CDISC ODM Format, www.cdisc.org, Operational Data Model) with more than 600,000 data-elements. This enables researchers to view, discuss, download and export forms in most common technical formats such as PDF, CSV, Excel, SQL, SPSS, R, etc. A growing user community will lead to a growing database of medical forms. In this matter, we would like to encourage all medical researchers to register and add forms and discuss existing forms.
All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=10.25504/fairsharing.wnk2eq&type=result"></script>'); --> </script>
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For further information contact us at helpdesk@openaire.eu - Institutional Repository Germany Compatibility:Not yet registeredPartners:TH Koln Technology Arts SciencesTH Koln Technology Arts SciencesAll Research products
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For further information contact us at helpdesk@openaire.eu - Data Repository Germany Compatibility:Not yet registeredPartners:Umweltbundesamt - Federal Environment Agency of Germany Environmental Science, Toxicology, environmental contaminantUmweltbundesamt - Federal Environment Agency of Germany
The ETOX database allows access to effects information from aquatic and terrestrial ecotoxicology. Furthermore, ETOX contains information on various national and international environmental quality guidelines, targets, standards, criteria, and limit values. In focus are substances which are relevant for assessment of surface water pollution to trigger the development of environmental quality standards according to Water Framework Directive 60/2000/EC.
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For further information contact us at helpdesk@openaire.eu - Data Repository Germany, Denmark Compatibility:collected from a compatible aggregatorPartners:Staatliche Naturwissenschaftliche Sammlungen Bayerns, Information Technology Center, SNSB, GBIF Natural Sciences, Geosciences (including Geography), Life SciencesStaatliche Naturwissenschaftliche Sammlungen Bayerns, Information Technology Center,SNSB,GBIFAll Research products
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For further information contact us at helpdesk@openaire.eu - Institutional Repository China (People's Republic of) Compatibility:Not yet registeredPartners:KMS Of Academy of mathematics and systems sciences, CASKMS Of Academy of mathematics and systems sciences, CASAll Research products
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For further information contact us at helpdesk@openaire.eu - Data Repository Germany Compatibility:Not yet registeredPartners:Münchener DigitalisierungsZentrum, Digitale Bibliothek, Leibniz Supercomputing Centre of the Bavarian Academy of Sciences and Humanities, Germany, BSB Humanities and Social Sciences, Engineering SciencesMünchener DigitalisierungsZentrum, Digitale Bibliothek,Leibniz Supercomputing Centre of the Bavarian Academy of Sciences and Humanities, Germany,BSB
re3data: r3d100010148
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For further information contact us at helpdesk@openaire.eu - Data Repository Canada, Germany Compatibility:Not yet registeredPartners:MNI, FZJ Life Sciences, Neurosciences, MedicineMNI,FZJ
re3data: r3d100013950
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For further information contact us at helpdesk@openaire.eu - Institutional Repository Germany Compatibility:OpenAIRE 3.0 (OA, funding)Partners:Scientific Information Service for Mobility and Transport Research (FID move)Scientific Information Service for Mobility and Transport Research (FID move)OAI-PMH URL: http://publish.fid-move.de/oai/
The repository is used for the publication, the proof and the long-term archiving of electronic documents. The interface is available in German and English.
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For further information contact us at helpdesk@openaire.eu - Data Repository European Union Compatibility:OpenAIRE Data (funded, referenced datasets)Partners:CESSDA Consortium, CESSDA Team Social Sciences, Empirical Social Research, Social and Behavioural SciencesCESSDA Consortium,CESSDA Team
re3data: r3d100010202
OAI-PMH URL: https://datacatalogue.cessda.eu/oai-pmh/v0/oaiThe CESSDA Data Catalogue contains the metadata of all data in the holdings of CESSDA service providers. It is a one-stop-shop for search and discovery, enabling effective access to European research data for researchers. Details of over 40, 000 data collections are listed. These are harvested from fifteen different CESSDA Service Providers.
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