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Institutional Repository of South China Sea Institute of Oceanology, CAS

Institutional Repository China (People's Republic of) Compatibility:Not yet registeredPartners:CAS

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System Competence Area Document Server

Institutional Repository Denmark Compatibility:Not yet registeredPartners:DTU

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Chemical Database Service
Data Repository United Kingdom Compatibility:Not yet registeredPartners:Daresbury Laboratory, EPSRC Natural Sciences, Chemistry
Daresbury Laboratory,
EPSRC
re3data: r3d100000021
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Complete Genomics
Data Repository China (People's Republic of), United States Compatibility:Not yet registeredPartners:BGI Shenzhen, Complete Genomics Life Sciences, Basic Biological and Medical Research, General Genetics
BGI Shenzhen,
Complete Genomics
re3data: r3d100011709
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Computer Laboratory Technical Reports - Cambridge University

Institutional Repository United Kingdom Compatibility:Not yet registeredPartners:University of Cambridge

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Royal Academy of Music PRESTO Archive

Institutional Repository United Kingdom Compatibility:Not yet registeredPartners:Royal Academy of Music

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Bath Spa University figshare
Data Repository United Kingdom Compatibility:Not yet registeredPartners:Bath Spa University Humanities and Social Sciences, Fine Arts, Music, Theatre and Media Studies, Linguistics
Bath Spa University
re3data: r3d100012148
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StudentTheses@CBS

Institutional Repository Denmark Compatibility:Not yet registeredPartners:CBS

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Aerade Reports Archive

Thematic Repository United Kingdom Compatibility:Not yet registeredPartners:Cranfield University

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European Pediatric Surgical Audit
Data Repository Netherlands, European Union Compatibility:Not yet registeredPartners:DICA, MRDM Pediatrics, Biomedical Science, Genetics
DICA,
MRDM
The EPSA | ERNICA Registry is to improve the quality of patient care by enabling health care providers to get insight in their outcomes and using the cumulative data from the EPSA registry to conduct scientific research, for example to compare treatments or identify certain risk factors for complications. The EPSA (European Pediatric Surgical Audit) registry contains information on diseases seen in new-born children, like: Hirschsprung’s disease, Congenital Diaphragmatic Hernia, Oesophageal Atresia, Anorectal Malformation, Omphalocele and Gastroschisis. ERNICA is the European Reference Network for rare Inherited and Congenital (digestive and gastrointestinal) Anomalies European Reference Networks and aims to pool together disease-specific expertise, knowledge and resources from across Europe to achieve health goals that may otherwise be unachievable in a single country. ERNICA monitors and evaluates its activities in accordance with the ERN-wide monitoring framework of expert healthcare professionals from specialised healthcare providers across Europe. These networks seek to pool together the expertise available across Europe and concentrate knowledge and resources on rare and/or complex diseases. Each ERN focuses on a particular rare disease area with two diagnostic groups: Malformations of the digestive system (oesophageal diseases, intestinal diseases, intestinal failure and gastroenterological diseases) and Malformations of the diaphragm and abdominal wall (Malformations of the diaphragm and Abdominal wall defects) This standard defines the metadata required to insure availability, versioning and interoperability of the EPSA|ERNICA data.
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4,607 Data sources

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Institutional Repository of South China Sea Institute of Oceanology, CAS

Institutional Repository China (People's Republic of) Compatibility:Not yet registeredPartners:CAS

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System Competence Area Document Server

Institutional Repository Denmark Compatibility:Not yet registeredPartners:DTU

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Chemical Database Service
Data Repository United Kingdom Compatibility:Not yet registeredPartners:Daresbury Laboratory, EPSRC Natural Sciences, Chemistry
Daresbury Laboratory,
EPSRC
re3data: r3d100000021
re3data: r3d100000021
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Complete Genomics
Data Repository China (People's Republic of), United States Compatibility:Not yet registeredPartners:BGI Shenzhen, Complete Genomics Life Sciences, Basic Biological and Medical Research, General Genetics
BGI Shenzhen,
Complete Genomics
re3data: r3d100011709
re3data: r3d100011709
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Computer Laboratory Technical Reports - Cambridge University

Institutional Repository United Kingdom Compatibility:Not yet registeredPartners:University of Cambridge

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Royal Academy of Music PRESTO Archive

Institutional Repository United Kingdom Compatibility:Not yet registeredPartners:Royal Academy of Music

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Bath Spa University figshare
Data Repository United Kingdom Compatibility:Not yet registeredPartners:Bath Spa University Humanities and Social Sciences, Fine Arts, Music, Theatre and Media Studies, Linguistics
Bath Spa University
re3data: r3d100012148
re3data: r3d100012148
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StudentTheses@CBS

Institutional Repository Denmark Compatibility:Not yet registeredPartners:CBS

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Aerade Reports Archive

Thematic Repository United Kingdom Compatibility:Not yet registeredPartners:Cranfield University

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European Pediatric Surgical Audit
Data Repository Netherlands, European Union Compatibility:Not yet registeredPartners:DICA, MRDM Pediatrics, Biomedical Science, Genetics
DICA,
MRDM
The EPSA | ERNICA Registry is to improve the quality of patient care by enabling health care providers to get insight in their outcomes and using the cumulative data from the EPSA registry to conduct scientific research, for example to compare treatments or identify certain risk factors for complications. The EPSA (European Pediatric Surgical Audit) registry contains information on diseases seen in new-born children, like: Hirschsprung’s disease, Congenital Diaphragmatic Hernia, Oesophageal Atresia, Anorectal Malformation, Omphalocele and Gastroschisis. ERNICA is the European Reference Network for rare Inherited and Congenital (digestive and gastrointestinal) Anomalies European Reference Networks and aims to pool together disease-specific expertise, knowledge and resources from across Europe to achieve health goals that may otherwise be unachievable in a single country. ERNICA monitors and evaluates its activities in accordance with the ERN-wide monitoring framework of expert healthcare professionals from specialised healthcare providers across Europe. These networks seek to pool together the expertise available across Europe and concentrate knowledge and resources on rare and/or complex diseases. Each ERN focuses on a particular rare disease area with two diagnostic groups: Malformations of the digestive system (oesophageal diseases, intestinal diseases, intestinal failure and gastroenterological diseases) and Malformations of the diaphragm and abdominal wall (Malformations of the diaphragm and Abdominal wall defects) This standard defines the metadata required to insure availability, versioning and interoperability of the EPSA|ERNICA data.
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GB
CN
EU
DK

Institutional Repository of South China Sea Institute of Oceanology, CAS

System Competence Area Document Server

Chemical Database Service

Complete Genomics

Computer Laboratory Technical Reports - Cambridge University

Royal Academy of Music PRESTO Archive

Bath Spa University figshare

StudentTheses@CBS

Aerade Reports Archive

European Pediatric Surgical Audit

Institutional Repository of South China Sea Institute of Oceanology, CAS

System Competence Area Document Server

Chemical Database Service

Complete Genomics

Computer Laboratory Technical Reports - Cambridge University

Royal Academy of Music PRESTO Archive

Bath Spa University figshare

StudentTheses@CBS

Aerade Reports Archive

European Pediatric Surgical Audit

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