2,658 Data sources
- NL
- CN
- AT
- EU
- NL
- CN
- AT
- EU
- Data Repository European Union, Netherlands Compatibility:Not yet registeredPartners:MRDM, DICA Pediatrics, Biomedical Science, GeneticsMRDM,DICA
The EPSA | ERNICA Registry is to improve the quality of patient care by enabling health care providers to get insight in their outcomes and using the cumulative data from the EPSA registry to conduct scientific research, for example to compare treatments or identify certain risk factors for complications. The EPSA (European Pediatric Surgical Audit) registry contains information on diseases seen in new-born children, like: Hirschsprung’s disease, Congenital Diaphragmatic Hernia, Oesophageal Atresia, Anorectal Malformation, Omphalocele and Gastroschisis. ERNICA is the European Reference Network for rare Inherited and Congenital (digestive and gastrointestinal) Anomalies European Reference Networks and aims to pool together disease-specific expertise, knowledge and resources from across Europe to achieve health goals that may otherwise be unachievable in a single country. ERNICA monitors and evaluates its activities in accordance with the ERN-wide monitoring framework of expert healthcare professionals from specialised healthcare providers across Europe. These networks seek to pool together the expertise available across Europe and concentrate knowledge and resources on rare and/or complex diseases. Each ERN focuses on a particular rare disease area with two diagnostic groups: Malformations of the digestive system (oesophageal diseases, intestinal diseases, intestinal failure and gastroenterological diseases) and Malformations of the diaphragm and abdominal wall (Malformations of the diaphragm and Abdominal wall defects) This standard defines the metadata required to insure availability, versioning and interoperability of the EPSA|ERNICA data.
All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=fairsharing_::8164d892d7aea8f1875df07f4d82ffd0&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eumore_vert All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=fairsharing_::8164d892d7aea8f1875df07f4d82ffd0&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eu - Data Repository Netherlands, United States Compatibility:OpenAIRE Data (funded, referenced datasets)Partners:Utrecht University, Dataverse, Trimbos Institute, University of Groningen, VUA +7 partners Humanities and Social Sciences, Life Sciences, Natural SciencesUtrecht University,Dataverse,Trimbos Institute,University of Groningen,VUA,DANS,Leiden University,LIS,NIOO,4TU.Federation,Universiteit Utrecht, Universiteitsbibliotheek,Maastricht University, University Library
re3data: r3d100011201
OAI-PMH URL: https://dataverse.nl/oaiOnline storage, sharing and registration of research data, during the research period and after its completion. DataverseNL is a shared service provided by participating institutions and DANS.
All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=10.25504/fairsharing.denvnv&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eumore_vert All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=10.25504/fairsharing.denvnv&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eu - Data Repository Belgium, European Union Compatibility:Not yet registeredPartners:Royal Observatory of Belqium, Global Navigation Satellite Systems Research Group, EUREF, IAG Natural Sciences, Atmospheric Science and Oceanography, Geophysics and GeodesyRoyal Observatory of Belqium, Global Navigation Satellite Systems Research Group,EUREF,IAG
re3data: r3d100011724
All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=r3d100011724&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eumore_vert All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=r3d100011724&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eu - Institutional Repository China (People's Republic of) Compatibility:OpenAIRE Basic (DRIVER OA)Partners:Chinese Academy Of Sciences, Institute of Psychology (中国科学院心理研究所)(PSYCH), ChinaChinese Academy Of Sciences, Institute of Psychology (中国科学院心理研究所)(PSYCH), China
This site provides access to the output of the institution. The interface is available in Chinese and English. Some items are not available as full-text.
All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=opendoar____::69dafe8b58066478aea48f3d0f384820&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eumore_vert All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=opendoar____::69dafe8b58066478aea48f3d0f384820&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eu - Data Repository Austria, Netherlands Compatibility:Not yet registeredPartners:OAW, ACDH-ÖAW, CLARIN, Österreich, Bundesministerium für Wissenschaft, Forschung und Wirtschaft Humanities and Social Sciences, Linguistics, HumanitiesOAW,ACDH-ÖAW,CLARIN,Österreich, Bundesministerium für Wissenschaft, Forschung und Wirtschaft
re3data: r3d100011333
All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=r3d100011333&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eumore_vert All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=r3d100011333&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eu - Data Repository Germany, Netherlands Compatibility:Not yet registeredPartners:CLARIN-D, TU Darmstadt, CEDIFOR, Goethe University Frankfurt, BMBF +3 partners Humanities and Social Sciences, Linguistics, Non-European Languages and Cultures, Social and Cultural Anthropology, Jewish Studies and Religious StudiesCLARIN-D,TU Darmstadt,CEDIFOR,Goethe University Frankfurt,BMBF,Centre for the Digital Foundation of Research in the Humanities, Social, and Educational Sciences,DIPF,CLARIN
re3data: r3d100012259
All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=r3d100012259&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eumore_vert All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=r3d100012259&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eu - Data Repository France, European Union, Germany, Netherlands, United States Compatibility:Not yet registeredPartners:IAS, European Space Agency, ISO Data Centre, MPE, MPIN, SRON +1 partners Natural Sciences, Astrophysics and Astronomy, PhysicsIAS,European Space Agency, ISO Data Centre,MPE,MPIN,SRON,IPAC
re3data: r3d100010597
All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=r3d100010597&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eumore_vert All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=r3d100010597&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eu - Data Repository Switzerland, European Union, Norway Compatibility:Not yet registeredPartners:UNIL, Consortium of European Social Science Data Archives, CESSDA, Swiss Academy of Pharmaceutical Sciences, SNSF +1 partners Humanities and Social Sciences, Non-European Languages and Cultures, Social and Cultural Anthropology, Jewish Studies and Religious Studies, Social and Cultural Anthropology and Ethnology/FolkloreUNIL,Consortium of European Social Science Data Archives,CESSDA,Swiss Academy of Pharmaceutical Sciences,SNSF,FORS
re3data: r3d100010368
All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=r3d100010368&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eumore_vert All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=r3d100010368&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eu - Data Repository Germany, United States, European Union, Norway Compatibility:Not yet registeredPartners:BMBF, OSF, European Union, Horizon 2020, Project Power-grid frequency database, Helmholtz Association of German Research Centres +3 partners Natural Sciences, Statistical Physics, Soft Matter, Biological Physics, Nonlinear Dynamics, PhysicsBMBF,OSF,European Union, Horizon 2020,Project Power-grid frequency database,Helmholtz Association of German Research Centres,Helmholtz Uncertainty Quantification project,University of Oslo, Research Council of Norway, Stochastics for Time-Space Risk Models Project,DFG
re3data: r3d100013364
All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=r3d100013364&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eumore_vert All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=r3d100013364&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eu - Institutional Repository China (People's Republic of) Compatibility:Not yet registeredPartners:CASCASAll Research products
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2,658 Data sources
- Data Repository European Union, Netherlands Compatibility:Not yet registeredPartners:MRDM, DICA Pediatrics, Biomedical Science, GeneticsMRDM,DICA
The EPSA | ERNICA Registry is to improve the quality of patient care by enabling health care providers to get insight in their outcomes and using the cumulative data from the EPSA registry to conduct scientific research, for example to compare treatments or identify certain risk factors for complications. The EPSA (European Pediatric Surgical Audit) registry contains information on diseases seen in new-born children, like: Hirschsprung’s disease, Congenital Diaphragmatic Hernia, Oesophageal Atresia, Anorectal Malformation, Omphalocele and Gastroschisis. ERNICA is the European Reference Network for rare Inherited and Congenital (digestive and gastrointestinal) Anomalies European Reference Networks and aims to pool together disease-specific expertise, knowledge and resources from across Europe to achieve health goals that may otherwise be unachievable in a single country. ERNICA monitors and evaluates its activities in accordance with the ERN-wide monitoring framework of expert healthcare professionals from specialised healthcare providers across Europe. These networks seek to pool together the expertise available across Europe and concentrate knowledge and resources on rare and/or complex diseases. Each ERN focuses on a particular rare disease area with two diagnostic groups: Malformations of the digestive system (oesophageal diseases, intestinal diseases, intestinal failure and gastroenterological diseases) and Malformations of the diaphragm and abdominal wall (Malformations of the diaphragm and Abdominal wall defects) This standard defines the metadata required to insure availability, versioning and interoperability of the EPSA|ERNICA data.
All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=fairsharing_::8164d892d7aea8f1875df07f4d82ffd0&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eumore_vert All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=fairsharing_::8164d892d7aea8f1875df07f4d82ffd0&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eu - Data Repository Netherlands, United States Compatibility:OpenAIRE Data (funded, referenced datasets)Partners:Utrecht University, Dataverse, Trimbos Institute, University of Groningen, VUA +7 partners Humanities and Social Sciences, Life Sciences, Natural SciencesUtrecht University,Dataverse,Trimbos Institute,University of Groningen,VUA,DANS,Leiden University,LIS,NIOO,4TU.Federation,Universiteit Utrecht, Universiteitsbibliotheek,Maastricht University, University Library
re3data: r3d100011201
OAI-PMH URL: https://dataverse.nl/oaiOnline storage, sharing and registration of research data, during the research period and after its completion. DataverseNL is a shared service provided by participating institutions and DANS.
All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=10.25504/fairsharing.denvnv&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eumore_vert All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=10.25504/fairsharing.denvnv&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eu - Data Repository Belgium, European Union Compatibility:Not yet registeredPartners:Royal Observatory of Belqium, Global Navigation Satellite Systems Research Group, EUREF, IAG Natural Sciences, Atmospheric Science and Oceanography, Geophysics and GeodesyRoyal Observatory of Belqium, Global Navigation Satellite Systems Research Group,EUREF,IAG
re3data: r3d100011724
All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=r3d100011724&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eumore_vert All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=r3d100011724&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eu - Institutional Repository China (People's Republic of) Compatibility:OpenAIRE Basic (DRIVER OA)Partners:Chinese Academy Of Sciences, Institute of Psychology (中国科学院心理研究所)(PSYCH), ChinaChinese Academy Of Sciences, Institute of Psychology (中国科学院心理研究所)(PSYCH), China
This site provides access to the output of the institution. The interface is available in Chinese and English. Some items are not available as full-text.
All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=opendoar____::69dafe8b58066478aea48f3d0f384820&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eumore_vert All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=opendoar____::69dafe8b58066478aea48f3d0f384820&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eu - Data Repository Austria, Netherlands Compatibility:Not yet registeredPartners:OAW, ACDH-ÖAW, CLARIN, Österreich, Bundesministerium für Wissenschaft, Forschung und Wirtschaft Humanities and Social Sciences, Linguistics, HumanitiesOAW,ACDH-ÖAW,CLARIN,Österreich, Bundesministerium für Wissenschaft, Forschung und Wirtschaft
re3data: r3d100011333
All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=r3d100011333&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eumore_vert All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=r3d100011333&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eu - Data Repository Germany, Netherlands Compatibility:Not yet registeredPartners:CLARIN-D, TU Darmstadt, CEDIFOR, Goethe University Frankfurt, BMBF +3 partners Humanities and Social Sciences, Linguistics, Non-European Languages and Cultures, Social and Cultural Anthropology, Jewish Studies and Religious StudiesCLARIN-D,TU Darmstadt,CEDIFOR,Goethe University Frankfurt,BMBF,Centre for the Digital Foundation of Research in the Humanities, Social, and Educational Sciences,DIPF,CLARIN
re3data: r3d100012259
All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=r3d100012259&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eumore_vert All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=r3d100012259&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eu - Data Repository France, European Union, Germany, Netherlands, United States Compatibility:Not yet registeredPartners:IAS, European Space Agency, ISO Data Centre, MPE, MPIN, SRON +1 partners Natural Sciences, Astrophysics and Astronomy, PhysicsIAS,European Space Agency, ISO Data Centre,MPE,MPIN,SRON,IPAC
re3data: r3d100010597
All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=r3d100010597&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eumore_vert All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=r3d100010597&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eu - Data Repository Switzerland, European Union, Norway Compatibility:Not yet registeredPartners:UNIL, Consortium of European Social Science Data Archives, CESSDA, Swiss Academy of Pharmaceutical Sciences, SNSF +1 partners Humanities and Social Sciences, Non-European Languages and Cultures, Social and Cultural Anthropology, Jewish Studies and Religious Studies, Social and Cultural Anthropology and Ethnology/FolkloreUNIL,Consortium of European Social Science Data Archives,CESSDA,Swiss Academy of Pharmaceutical Sciences,SNSF,FORS
re3data: r3d100010368
All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=r3d100010368&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eumore_vert All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=r3d100010368&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eu - Data Repository Germany, United States, European Union, Norway Compatibility:Not yet registeredPartners:BMBF, OSF, European Union, Horizon 2020, Project Power-grid frequency database, Helmholtz Association of German Research Centres +3 partners Natural Sciences, Statistical Physics, Soft Matter, Biological Physics, Nonlinear Dynamics, PhysicsBMBF,OSF,European Union, Horizon 2020,Project Power-grid frequency database,Helmholtz Association of German Research Centres,Helmholtz Uncertainty Quantification project,University of Oslo, Research Council of Norway, Stochastics for Time-Space Risk Models Project,DFG
re3data: r3d100013364
All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=r3d100013364&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eumore_vert All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=r3d100013364&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eu - Institutional Repository China (People's Republic of) Compatibility:Not yet registeredPartners:CASCASAll Research products
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