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- Data Repository Netherlands, European Union Compatibility:Not yet registeredPartners:DICA, MRDM Pediatrics, Biomedical Science, GeneticsDICA,MRDM
The EPSA | ERNICA Registry is to improve the quality of patient care by enabling health care providers to get insight in their outcomes and using the cumulative data from the EPSA registry to conduct scientific research, for example to compare treatments or identify certain risk factors for complications. The EPSA (European Pediatric Surgical Audit) registry contains information on diseases seen in new-born children, like: Hirschsprung’s disease, Congenital Diaphragmatic Hernia, Oesophageal Atresia, Anorectal Malformation, Omphalocele and Gastroschisis. ERNICA is the European Reference Network for rare Inherited and Congenital (digestive and gastrointestinal) Anomalies European Reference Networks and aims to pool together disease-specific expertise, knowledge and resources from across Europe to achieve health goals that may otherwise be unachievable in a single country. ERNICA monitors and evaluates its activities in accordance with the ERN-wide monitoring framework of expert healthcare professionals from specialised healthcare providers across Europe. These networks seek to pool together the expertise available across Europe and concentrate knowledge and resources on rare and/or complex diseases. Each ERN focuses on a particular rare disease area with two diagnostic groups: Malformations of the digestive system (oesophageal diseases, intestinal diseases, intestinal failure and gastroenterological diseases) and Malformations of the diaphragm and abdominal wall (Malformations of the diaphragm and Abdominal wall defects) This standard defines the metadata required to insure availability, versioning and interoperability of the EPSA|ERNICA data.
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For further information contact us at helpdesk@openaire.eu - Institutional Repository Spain Compatibility:OpenAIRE 3.0 (OA, funding)Partners:CSIC Multidisciplinary, Science General, Agriculture, Food and VeterinaryCSICOAI-PMH URL: https://digital.csic.es/dspace-oai/request
This is the institutional repository of the Spanish National Research Council (CSIC) that provides access to the scientific output produced by CSIC researchers. the interface may be read in English or Spanish.
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For further information contact us at helpdesk@openaire.eu - Data Repository European Union, Austria Compatibility:Not yet registeredPartners:CLARIN K(nowledge)-Centres, OAW Humanities and Social Sciences, Fine Arts, Music, Theatre and Media Studies, LinguisticsCLARIN K(nowledge)-Centres,OAW
re3data: r3d100012527
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For further information contact us at helpdesk@openaire.eu - Institutional Repository Netherlands Compatibility:Not yet registeredPartners:University of GroningenUniversity of GroningenAll Research products
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European Spallation Source (ESS) Data Catalogue, SciCat instance
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For further information contact us at helpdesk@openaire.eu - Data Repository Sweden, Spain Compatibility:Not yet registeredPartners:World Values Survey, ASEP/JDS, WVSA Humanities and Social Sciences, Social Sciences, Social and Behavioural SciencesWorld Values Survey,ASEP/JDS,WVSA
re3data: r3d100010572
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For further information contact us at helpdesk@openaire.eu - Institutional Repository Spain Compatibility:OpenAIRE 3.0 (OA, funding)Partners:UCLM MultidisciplinaryUCLMOAI-PMH URL: https://ruidera.uclm.es/oai/request
This site provides access to the research outputs of the institution. Users may set up RSS feeds. The interface is in Spanish.
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For further information contact us at helpdesk@openaire.eu - Institutional Repository Spain Compatibility:OpenAIRE 3.0 (OA, funding)Partners:IMDEA Networks InstituteIMDEA Networks InstituteOAI-PMH URL: http://eprints.imdea-agua.org:13000/cgi/oai2
This site provides access to the research outputs of IMDEA AGUA. Users may set up RSS feeds to be alerted to new content. The interface is available in English.
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For further information contact us at helpdesk@openaire.eu - Data Repository Belgium, Germany, Spain Compatibility:Not yet registeredPartners:PRACE, AstroGrid-D, AIP, Multimessenger Approach for Dark Matter Detection, GAVO Natural Sciences, Astrophysics and Astronomy, PhysicsPRACE,AstroGrid-D,AIP,Multimessenger Approach for Dark Matter Detection,GAVO
re3data: r3d100011040
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- Data Repository Netherlands, European Union Compatibility:Not yet registeredPartners:DICA, MRDM Pediatrics, Biomedical Science, GeneticsDICA,MRDM
The EPSA | ERNICA Registry is to improve the quality of patient care by enabling health care providers to get insight in their outcomes and using the cumulative data from the EPSA registry to conduct scientific research, for example to compare treatments or identify certain risk factors for complications. The EPSA (European Pediatric Surgical Audit) registry contains information on diseases seen in new-born children, like: Hirschsprung’s disease, Congenital Diaphragmatic Hernia, Oesophageal Atresia, Anorectal Malformation, Omphalocele and Gastroschisis. ERNICA is the European Reference Network for rare Inherited and Congenital (digestive and gastrointestinal) Anomalies European Reference Networks and aims to pool together disease-specific expertise, knowledge and resources from across Europe to achieve health goals that may otherwise be unachievable in a single country. ERNICA monitors and evaluates its activities in accordance with the ERN-wide monitoring framework of expert healthcare professionals from specialised healthcare providers across Europe. These networks seek to pool together the expertise available across Europe and concentrate knowledge and resources on rare and/or complex diseases. Each ERN focuses on a particular rare disease area with two diagnostic groups: Malformations of the digestive system (oesophageal diseases, intestinal diseases, intestinal failure and gastroenterological diseases) and Malformations of the diaphragm and abdominal wall (Malformations of the diaphragm and Abdominal wall defects) This standard defines the metadata required to insure availability, versioning and interoperability of the EPSA|ERNICA data.
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For further information contact us at helpdesk@openaire.eu - Institutional Repository Spain Compatibility:OpenAIRE 3.0 (OA, funding)Partners:CSIC Multidisciplinary, Science General, Agriculture, Food and VeterinaryCSICOAI-PMH URL: https://digital.csic.es/dspace-oai/request
This is the institutional repository of the Spanish National Research Council (CSIC) that provides access to the scientific output produced by CSIC researchers. the interface may be read in English or Spanish.
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For further information contact us at helpdesk@openaire.eu - Data Repository European Union, Austria Compatibility:Not yet registeredPartners:CLARIN K(nowledge)-Centres, OAW Humanities and Social Sciences, Fine Arts, Music, Theatre and Media Studies, LinguisticsCLARIN K(nowledge)-Centres,OAW
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For further information contact us at helpdesk@openaire.eu - Data Repository Sweden, Spain Compatibility:Not yet registeredPartners:World Values Survey, ASEP/JDS, WVSA Humanities and Social Sciences, Social Sciences, Social and Behavioural SciencesWorld Values Survey,ASEP/JDS,WVSA
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For further information contact us at helpdesk@openaire.eu - Institutional Repository Spain Compatibility:OpenAIRE 3.0 (OA, funding)Partners:UCLM MultidisciplinaryUCLMOAI-PMH URL: https://ruidera.uclm.es/oai/request
This site provides access to the research outputs of the institution. Users may set up RSS feeds. The interface is in Spanish.
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For further information contact us at helpdesk@openaire.eu - Institutional Repository Spain Compatibility:OpenAIRE 3.0 (OA, funding)Partners:IMDEA Networks InstituteIMDEA Networks InstituteOAI-PMH URL: http://eprints.imdea-agua.org:13000/cgi/oai2
This site provides access to the research outputs of IMDEA AGUA. Users may set up RSS feeds to be alerted to new content. The interface is available in English.
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