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- Data Repository European Union Compatibility:OpenAIRE Data (funded, referenced datasets)Partners:CESSDA Consortium, CESSDA Team Social Sciences, Empirical Social Research, Social and Behavioural SciencesCESSDA Consortium,CESSDA Team
re3data: r3d100010202
OAI-PMH URL: https://datacatalogue.cessda.eu/oai-pmh/v0/oaiThe CESSDA Data Catalogue contains the metadata of all data in the holdings of CESSDA service providers. It is a one-stop-shop for search and discovery, enabling effective access to European research data for researchers. Details of over 40, 000 data collections are listed. These are harvested from fifteen different CESSDA Service Providers.
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For further information contact us at helpdesk@openaire.eu - Institutional Repository Poland Compatibility:Not yet registeredPartners:Polsko-Japońska Wyższa Szkoła Technik Komputerowych / Polish-Japanese Institute of Information TechnologyPolsko-Japońska Wyższa Szkoła Technik Komputerowych / Polish-Japanese Institute of Information TechnologyAll Research products
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For further information contact us at helpdesk@openaire.eu - Data Repository Belgium Compatibility:Not yet registeredPartners:Department of Plant Biotechnology and Bioinformatics, Ghent University, Ghent, Belgium, VIB-UGent Center for Plant Systems Biology, Ghent, Belgium Life Science, Genomics, Genome annotationDepartment of Plant Biotechnology and Bioinformatics, Ghent University, Ghent, Belgium,VIB-UGent Center for Plant Systems Biology, Ghent, Belgium
The Online Resource for Community Annotation of Eukaryotes (ORCAE) is an online genome annotation resource offering users the necessary tools and information to validate and correct gene annotations. It is a gene-centric wiki-style annotation portal offering public access to a wide variety of plant, fungal and animal genomes. The basic setup of ORCAE is highly comparable to wiki systems such as MediaWiki, and the information page for each gene can be seen as a ‘topic’ page of a traditional text wiki.
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For further information contact us at helpdesk@openaire.eu - Thematic Repository Belgium Compatibility:Not yet registeredPartners:International Oceanographic Data and Information ExchangeInternational Oceanographic Data and Information ExchangeAll Research products
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For further information contact us at helpdesk@openaire.eu - Institutional Repository Poland Compatibility:Not yet registeredPartners:Powiatowa i Miejska Biblioteka Publiczna w Wejherowie im. Aleksandra MajkowskiegoPowiatowa i Miejska Biblioteka Publiczna w Wejherowie im. Aleksandra MajkowskiegoAll Research products
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For further information contact us at helpdesk@openaire.eu - Data Repository Poland Compatibility:Not yet registeredPartners:Jagiellonian University Medical College Life Sciences, Natural SciencesJagiellonian University Medical College
re3data: r3d100014101
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For further information contact us at helpdesk@openaire.eu - Data Repository Poland Compatibility:Not yet registeredPartners:Koszalin University of Technology Humanities and Social Sciences, Social Sciences, EconomicsKoszalin University of Technology
re3data: r3d100013789
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For further information contact us at helpdesk@openaire.eu - Data Repository European Union, Netherlands Compatibility:Not yet registeredPartners:MRDM, DICA Pediatrics, Biomedical Science, GeneticsMRDM,DICA
The EPSA | ERNICA Registry is to improve the quality of patient care by enabling health care providers to get insight in their outcomes and using the cumulative data from the EPSA registry to conduct scientific research, for example to compare treatments or identify certain risk factors for complications. The EPSA (European Pediatric Surgical Audit) registry contains information on diseases seen in new-born children, like: Hirschsprung’s disease, Congenital Diaphragmatic Hernia, Oesophageal Atresia, Anorectal Malformation, Omphalocele and Gastroschisis. ERNICA is the European Reference Network for rare Inherited and Congenital (digestive and gastrointestinal) Anomalies European Reference Networks and aims to pool together disease-specific expertise, knowledge and resources from across Europe to achieve health goals that may otherwise be unachievable in a single country. ERNICA monitors and evaluates its activities in accordance with the ERN-wide monitoring framework of expert healthcare professionals from specialised healthcare providers across Europe. These networks seek to pool together the expertise available across Europe and concentrate knowledge and resources on rare and/or complex diseases. Each ERN focuses on a particular rare disease area with two diagnostic groups: Malformations of the digestive system (oesophageal diseases, intestinal diseases, intestinal failure and gastroenterological diseases) and Malformations of the diaphragm and abdominal wall (Malformations of the diaphragm and Abdominal wall defects) This standard defines the metadata required to insure availability, versioning and interoperability of the EPSA|ERNICA data.
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- Data Repository European Union Compatibility:OpenAIRE Data (funded, referenced datasets)Partners:CESSDA Consortium, CESSDA Team Social Sciences, Empirical Social Research, Social and Behavioural SciencesCESSDA Consortium,CESSDA Team
re3data: r3d100010202
OAI-PMH URL: https://datacatalogue.cessda.eu/oai-pmh/v0/oaiThe CESSDA Data Catalogue contains the metadata of all data in the holdings of CESSDA service providers. It is a one-stop-shop for search and discovery, enabling effective access to European research data for researchers. Details of over 40, 000 data collections are listed. These are harvested from fifteen different CESSDA Service Providers.
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For further information contact us at helpdesk@openaire.eu - Institutional Repository Poland Compatibility:Not yet registeredPartners:Polsko-Japońska Wyższa Szkoła Technik Komputerowych / Polish-Japanese Institute of Information TechnologyPolsko-Japońska Wyższa Szkoła Technik Komputerowych / Polish-Japanese Institute of Information TechnologyAll Research products
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For further information contact us at helpdesk@openaire.eu - Data Repository Belgium Compatibility:Not yet registeredPartners:Department of Plant Biotechnology and Bioinformatics, Ghent University, Ghent, Belgium, VIB-UGent Center for Plant Systems Biology, Ghent, Belgium Life Science, Genomics, Genome annotationDepartment of Plant Biotechnology and Bioinformatics, Ghent University, Ghent, Belgium,VIB-UGent Center for Plant Systems Biology, Ghent, Belgium
The Online Resource for Community Annotation of Eukaryotes (ORCAE) is an online genome annotation resource offering users the necessary tools and information to validate and correct gene annotations. It is a gene-centric wiki-style annotation portal offering public access to a wide variety of plant, fungal and animal genomes. The basic setup of ORCAE is highly comparable to wiki systems such as MediaWiki, and the information page for each gene can be seen as a ‘topic’ page of a traditional text wiki.
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For further information contact us at helpdesk@openaire.eu - Thematic Repository Belgium Compatibility:Not yet registeredPartners:International Oceanographic Data and Information ExchangeInternational Oceanographic Data and Information ExchangeAll Research products
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For further information contact us at helpdesk@openaire.eu - Institutional Repository Poland Compatibility:Not yet registeredPartners:Powiatowa i Miejska Biblioteka Publiczna w Wejherowie im. Aleksandra MajkowskiegoPowiatowa i Miejska Biblioteka Publiczna w Wejherowie im. Aleksandra MajkowskiegoAll Research products
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For further information contact us at helpdesk@openaire.eu - Data Repository Poland Compatibility:Not yet registeredPartners:Jagiellonian University Medical College Life Sciences, Natural SciencesJagiellonian University Medical College
re3data: r3d100014101
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For further information contact us at helpdesk@openaire.eu - Data Repository Poland Compatibility:Not yet registeredPartners:Koszalin University of Technology Humanities and Social Sciences, Social Sciences, EconomicsKoszalin University of Technology
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For further information contact us at helpdesk@openaire.eu - Data Repository European Union, Netherlands Compatibility:Not yet registeredPartners:MRDM, DICA Pediatrics, Biomedical Science, GeneticsMRDM,DICA
The EPSA | ERNICA Registry is to improve the quality of patient care by enabling health care providers to get insight in their outcomes and using the cumulative data from the EPSA registry to conduct scientific research, for example to compare treatments or identify certain risk factors for complications. The EPSA (European Pediatric Surgical Audit) registry contains information on diseases seen in new-born children, like: Hirschsprung’s disease, Congenital Diaphragmatic Hernia, Oesophageal Atresia, Anorectal Malformation, Omphalocele and Gastroschisis. ERNICA is the European Reference Network for rare Inherited and Congenital (digestive and gastrointestinal) Anomalies European Reference Networks and aims to pool together disease-specific expertise, knowledge and resources from across Europe to achieve health goals that may otherwise be unachievable in a single country. ERNICA monitors and evaluates its activities in accordance with the ERN-wide monitoring framework of expert healthcare professionals from specialised healthcare providers across Europe. These networks seek to pool together the expertise available across Europe and concentrate knowledge and resources on rare and/or complex diseases. Each ERN focuses on a particular rare disease area with two diagnostic groups: Malformations of the digestive system (oesophageal diseases, intestinal diseases, intestinal failure and gastroenterological diseases) and Malformations of the diaphragm and abdominal wall (Malformations of the diaphragm and Abdominal wall defects) This standard defines the metadata required to insure availability, versioning and interoperability of the EPSA|ERNICA data.
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