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Understanding rheumatoid arthritis patients' prioritisation of treatment outcomes and formation of global well-being

Funder: UK Research and InnovationProject code: G0802695
Funded under: MRC Funder Contribution: 158,691 GBP

Understanding rheumatoid arthritis patients' prioritisation of treatment outcomes and formation of global well-being

Description

Rheumatoid arthritis (RA) is a disease that can be disabling as a result of painful, swollen joints, joint deformity, fatigue, and unpredictable inflammation. The condition is commonly diagnosed between 30 and 50 years, and can impact severely on home and work life. Assessment of the effectiveness of treatments for RA is dominated by doctors‘ and nurses‘ opinions, and the patients‘ perspective is minimal. The research aims to ensure that changes which are important to patients are routinely assessed in research and clinical settings. In rheumatology, there is limited research on the effect of cultural issues on health care for RA. The new study will begin to address this by examining the different socio-cultural perceptions of RA in Punjabi speaking patients, and how these may impact on their health care, with a long-term view of conducting a large cross-cultural study with different ethnic minority groups. The researcher was trained in the social sciences and uses both qualitative and quantitative methods. Two patients will collaborate in the research team meetings. Through engagement with the media and policy makers, the research outcomes will lead to an improvement in health professionals‘ understanding of patients‘ priorities in RA, and in patients‘ decisions about treatment options.

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